Purple Caffe Fife was formed in April 2017, when a small group of Fife families, all of whom were affected by epilepsy, either as parents or patients themselves, got together to create a support network for other families in Fife, living with the condition.
Despite having twice the national average of children diagnosed with epilepsy in Fife, no support existed for these families, who would need to travel to Edinburgh and beyond in search of the kind of support they need.
Purple Caffe Fife has been created to fill that void – whether it be a family coming to terms with a new diagnosis, children seeking reassurance that they are not alone, or a parent (or parents) just needing a coffee and a blether (and probably some cake!), we are here to help.
We were awarded charitable status in July 2017. Purple Caffe Fife SCIO is a Scottish Charitable Incorporated Organisation regulated by the Office of the Scottish Charity Regulator under the Charities and Trustee Investment (Scotland) Act 2005.
Aims and Objectives
The relief of those in need by reason of age, ill health, disability, financial hardship or other disadvantage, by carrying out the following activities:
- To provide online and peer-to-peer support within Fife to children, young people and their families dealing with epilepsy
- To increase awareness and stop ignorance and misunderstanding of epilepsy
- To raise funds to provide activities for the group and its Members
- To raise funds to aid the purchase of epilepsy assistance aids for families in Fife
- To link with other like-minded organisations in Fife, Scotland and the United Kingdom to provide support and information relating to epilepsy
How Will We Do This
- Promote an ethos of positive thinking and mental wellbeing
- Work with key medical practitioners to provide information (not medical advice)
- Develop bespoke audio-visual materials and literature to help increase awareness
- Roll-out an educational programme to increase awareness and remove the many stigma within schools
- Raise money via fundraising events, and grant/funding applications
- Actively engage with other epilepsy awareness events (8 calendar days per annum)
- February – International Epilepsy Day
- March – Purple Day for Epilepsy
- May – National Epilepsy Week #epilepsyweek
- November – National Epilepsy Day